If you’re a Houstonian, you know the Houston Texans’ Ultimate Fan, real name, Steve Beckholt.
If you’ve been to a Texans game you have most likely seen Ultimate walking around or posing for pics and if you watch any of our local news there is not doubt, you have seen him on it showing his love and passion for his home team.
Well, Ultimate fan took to social media to share a part of his personal life that most or all of people had no idea existed about him.
Ultimate is trying to educate and ask people to help out people who suffer form Marfan syndrome… According to their website, the Marfan organization says, “Marfan syndrome is a genetic disorder that affects the body’s connective tissue. Connective tissue holds all the body’s cell, organs and tissue together. It also plays an important role in helping the body grow and develop properly.”
It’s a disorder that 1 in 5,000 people have and this is including men and women of all races and different ethnic groups. The numbers are pretty crazy because 3 out of 4 people inherit it and that means they receive the gene from a parent. There are different strains of it and the most extreme effects the heart… or as Ultimate fan explains about his 11-year old son, the aorta can be effected.
Ultimate’s son is named Hunter and Hunter was diagnosed at 3-years old and now, his aorta is checked out ever six months and his son also deals with scoliosis.
The Marfan Foundation, Inc. has a ‘Walk for Victory’ that is happening in four states and that is coming soon to four other states… but the very first Houston walk is going down at the Discovery Green in Downtown Houston.
Check it out and check out The Ultimate Fan’s full story here, it’s like he says in his story, “If you know me, you know I’m not one to sit on the sidelines.”
that is happening on Saturday, February 20, 2016, do is a group of people who need it.
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