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Mother kissing sleeping infant

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In South Dakota, a newborn named Paisley was born with a condition called Beckwith-Wiedemann syndrome.
This syndrome is something that causes organs and body parts to be overgrown and it affects about 300 American newborns.
Paisley was born with a tongue that was twice her size and it wasn’t possible for her to shut her mouth.
“Her tongue was constantly sticking out, she was always chewing on her tongue because it took up so much room in her mouth,” said her mother Madison. “It always looked like she was making silly faces.”
The Dr.’s had concerns about Paisley adult-sized tongue, they didn’t want her to suffocate her. When Paisley was born, the Dr.’s put her on a ventilator so that they knew she was breathing.
When she turned 6 months, the Dr.’s clipped tongue two inches, but that wasn’t enough because things didn’t get better.

Paisley received a second surgery and the Dr.’s removed a good amount of her tongue again and now the baby can fulling shut her mouth.

“Since recovering, she smiled for the very first time,” her mom said. “I couldn’t believe it and was shocked by how beautiful my little girl looked.”
Her next step is to try and speak her first words.
“She couldn’t even make the sounds to say words like ‘mama’ and ‘dada’ before because or the size of her tongue, so this feels like a massive achievement,” Mom said.
Her condition can develope into cancerous tumors so, Paisley will have to be monitored by the Dr.’s for every three months until she turns eight years old.

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